I started keeping a journal shortly after David was diagnosed with Alzheimer's. I knew I wouldn't remember dates and details,....and I'm a detail person.
The first months after David's diagnosis, my head was spinning with so much confusion, anxiety, fear and grief..........., but at night I'd sit down at the computer and write. I know for me, it's been therapeautic to put on paper what I'm feeling and to document what's happening in our lives.. I don't write everyday....., but I try to keep up with most that's happening in our life.In the beginning of this journey......., I wanted to educate myself about 'what to expect' from Alzheimer's (I thought the bottom was going to fall out SOON). I read books on Alzheimer's..... and I joined Alzheimer forums on the internet, and they left me depressed and scared. Now I know that Alzheimer's affects each person differently.............. Here we are 3 years and 4 months from the diagnosis, and David is still doing so much better than I ever expected at this time!
Don't get me wrong ..... the days aren't perfect, they're different, but I simply could not function day to day, being so afraid of the future. Now...I only read articles and stories of hope.
I started this blog because I wanted to share some hope and encouragement to others with Alzheimer's. I never thought we'd have the three good years we've had...... I'm glad I don't know the future....but would anyone want to know the future?...I think not.
I know as Alzheimer's progresses, there will be a time when reading more about this dreadful disease........ and connecting with the forums .....etc.... will be helpful for me, but right now..... today.......we will move forward with Alzheimer's ...one step at a time .... and live each day for the here and now......life is different, but it's not bad.......
I praise God for the good days!!!!
3 comments:
What a beautiful post! You are an inspiration to stay in the "here and now" and stay positive, since the alternative just makes us miserable! I think this is good advice for EVERYONE, whether their dealing with disease or not!
LOVED the pics!! L~
Dear Dolores ... I couldn't sleep tonight and got up after four hours thinking my computer would help me climb back into bed eventually. Imagine my luck ... I found your blog through Ms. Tomarie's new blog. I am so glad I did. You are doing just what you should be doing .. enjoying life, journaling and loving your husband. I began my blog last November, partially motivated by my desire to 'publish' the poetry I wrote about my mother. It has evolved since November but I still post about her from time to time, her Alzheimer's journey, my journey caring for her during the last five years of her life. I want you to know that I am thinking of you, I support you and I am here if you need to talk. NOW, I must try to sleep!
You are doing a great thing mom! I am so proud of you for sharing your story! I think your blog is a comforting place for people to not feel so negative about Alzheimer's.
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